Do patient-reported outcome measures measure up? A qualitative study to examine perceptions and experiences with heart failure proms among diverse, low-income patients

RT @skye_barbic: Risk of "Standardized" approaches to measurement, we must carefully examine how measures are designed. "Do PROMs measure…

Risk of "Standardized" approaches to measurement, we must carefully examine how measures are designed. "Do PROMs measure up? A qual study to examine perceptions and experiences with heart failure proms among diverse, low-income patients" https://t.co/1hPE

RT @JonathanDavisHF: How does our diverse, publicly-insured #HF population view Patient-Reported Outcome Measures? Incredible opportunity…

More research Ike this 👏 👏 👏

RT @JonathanDavisHF: How does our diverse, publicly-insured #HF population view Patient-Reported Outcome Measures? Incredible opportunity…

RT @JonathanDavisHF: How does our diverse, publicly-insured #HF population view Patient-Reported Outcome Measures? Incredible opportunity…

Grateful for this opportunity to work with this team and share learnings from this article. #outcome #measures #qualresearch @ucsfcvp

RT @JonathanDavisHF: How does our diverse, publicly-insured #HF population view Patient-Reported Outcome Measures? Incredible opportunity…

Patients were receptive to the KCCQ-12, but they perceived that it did not capture Social Determinants of Health, e.g., mental health and social relationships, that deeply impact their ability to manage HF. #SDoH #healthequity https://t.co/O6jyDdeIIp h

A study from CVP researchers + colleagues examined the acceptability of the KCCQ-12, a measure to assess the health of patients w/ heart failure, among racially & ethnically diverse patients. What did they find? 🧵 https://t.co/O6jyDdeIIp

Great paper by my colleagues @JonathanDavisHF @UrmimalaSarkar & team who asked patients w ❤️failure @ZSFGCare about KCCQ: pt perspective is that need to incorporate SDOH esp social support, health care environ & mental health. Need diversity in dev

RT @UrmimalaSarkar: There is a gap between our patients' lived experiences with #HF and standardized, well-validated patient reported outco…

There is a gap between our patients' lived experiences with #HF and standardized, well-validated patient reported outcomes. Another argument for including our diverse, marginalized patients in research.

How does our diverse, publicly-insured #HF population view Patient-Reported Outcome Measures? Incredible opportunity to work w @UrmimalaSarkar @CourtneyRLyles @sarahlisker @KristanOlazo Maribel Sierra & @US_FDA team! @UCSFIMChiefs @UCSFCardiology htt

RT @JPRO_ISOQOL: Do patient-reported outcome measures measure up? A qualitative study to examine perceptions and experiences with heart fai…

RT @JPRO_ISOQOL: Do patient-reported outcome measures measure up? A qualitative study to examine perceptions and experiences with heart fai…

RT @JPRO_ISOQOL: Do patient-reported outcome measures measure up? A qualitative study to examine perceptions and experiences with heart fai…

Do patient-reported outcome measures measure up? A qualitative study to examine perceptions and experiences with heart failure proms among diverse, low-income patients https://t.co/nhfIsYwFWp