Preliminary development of proxy-rated quality-of-life scales for children and adults with Niemann-Pick type C
Article in Quality of Life Research (November 2019)
The most recent citing publications are shown below. View all 28 publications that cite this research output on Dimensions.
A Philosophical View on the Experience of Dignity and Autonomy through the Phenomenology of Illness.
Article in The Journal of Medicine and Philosophy (May 2019)
Contested Illness in Context
Monograph (April 2019)