RT @longevitycourse: Assessing disease experience across the life span for individuals with osteogenesis imperfecta: challenges and opportu…
Assessing disease experience across the life span for individuals with osteogenesis imperfecta: challenges and opportunities for patient-reported outcomes (PROs) measurement: a pilot study. https://t.co/wvtDGV77LS
#NIAMSResearch @ChildrensHealth: “Assessing disease experience across the life span for individuals with #OsteogenesisImperfecta: challenges & opportunities for patient-reported outcomes (PROs) measurement.” https://t.co/DwFHysNazd. Open Access paper @
RT @pulseinfoframe: A study just published in the @ojrarediseases demonstrates how useful a patient registry can be in collecting real worl…
A study just published in the @ojrarediseases demonstrates how useful a patient registry can be in collecting real world evidence. This study used information from the Brittle Bones Disease Consortium (BBDC) Contact Registry for People w/ OI. #rarediseases
Assessing disease experience across the life span for individuals with osteogenesis imperfecta: challenges and opportunities for patient-reported outcomes (PROs) measurement: a pilot study https://t.co/ANf7z4IKMT
RT @alecpett: Assessing disease experience across the life span for individuals with osteogenesis imperfecta: challenges and opportunities…
RT @alecpett: Assessing disease experience across the life span for individuals with osteogenesis imperfecta: challenges and opportunities…
Assessing disease experience across the life span for individuals with osteogenesis imperfecta: challenges and opportunities for patient-reported outcomes (PROs) measurement: a pilot study https://t.co/IadSOh5RwG #digitalhealth #innovation #healthtech #med