648 followers
RT @CUREiHUS: Wauw that is great news! In close collaboration with @MaastrichtUMC #orpandrugs #eculizumab #patientknowsbest https://t.co/nK…
648 followers
RT @PatientJournal: Here is No.4 in the top 10 downloaded articles in @PatientJournal in 2018. @CUREiHUS https://t.co/Dgm2baxgiO
737 followers
RT @PatientJournal: Here is No.4 in the top 10 downloaded articles in @PatientJournal in 2018. @CUREiHUS https://t.co/Dgm2baxgiO
74 followers
Wauw that is great news! In close collaboration with @MaastrichtUMC #orpandrugs #eculizumab #patientknowsbest
1,277 followers
Here is No.4 in the top 10 downloaded articles in @PatientJournal in 2018. @CUREiHUS https://t.co/Dgm2baxgiO
1,277 followers
648 followers
Wel done @NierpatientenNL @Longfonds @longfibrose !
413 followers
RT aHUSAllianceAct RT aHUSUKvoice: Small number of #aHUS patients in the Netherlands involved in testing the development of a patient feedback questionnaire for the experience and satisfaction with treatment.Comparisons made with other drugs and diseases…
413 followers
RT aHUSAllianceAct RT CUREiHUS: Our article regarding the use of Patient Experiences and Satisfaction with Medications (PESaM) questionnaire in among other #aHUS patients with #orphandrug #eculizumab is available https://t.co/SfHXQwbePj
948 followers
RT @aHUSUKvoice: Small number of #aHUS patients in the Netherlands involved in testing the development of a patient feedback questionnaire…
948 followers
815 followers
Small number of #aHUS patients in the Netherlands involved in testing the development of a patient feedback questionnaire for the experience and satisfaction with treatment.Comparisons made with other drugs and diseases not dialysis.
74 followers
Our article regarding the use of Patient Experiences and Satisfaction with Medications (PESaM) questionnaire in among other #aHUS patients with #orphandrug #eculizumab is available https://t.co/kpLVsYJ2Ko