| Title |
Measuring quality of life in the parents of children with asthma
|
|---|---|
| Published in |
Quality of Life Research, February 1996
|
| DOI | 10.1007/bf00435966 |
| Pubmed ID | |
| Authors |
E. F. Juniper, G. H. Guyatt, D. H. Feeny, P. J. Ferrie, L. E. Griffith, M. Townsend |
| Abstract |
Parents and primary caregivers of children with asthma are limited in normal daily activities and experience anxieties and fears due to the child's illness. We have developed the Paediatric Asthma Caregiver's Quality of Life Questionnaire (PACQLQ) to measure these impairments. The objective of this study was to evaluate the measurement properties of the PACQLQ. A 9-week single cohort study was conducted with assessments at 1, 5 and 9 weeks. Participants in the study were primary caregivers of 52 children (age 7-17 years) with symptomatic asthma, recruited from notices in the local media and paediatric asthma clinics. Caregivers completed the PACQLQ, Impact-on-Family Scale and Global Rating of Change Questionnaires. Patients completed the Paediatric Asthma Quality of Life Questionnaire and an asthma control questionnaire. Spirometry and beta-agonist use were recorded. The PACQLQ was able to detect quality of life changes in those caregivers who changed (p < 0.001) and to differentiate these from the caregivers whose quality of life remained stable (p < 0.0001). The PACQLQ is reproducible in subjects who are stable (ICC = 0.84), and showed acceptable levels of longitudinal and cross-sectional correlations with the child's asthma status and health-related quality of life and with other measures of caregiver health-related quality of life. The PACQLQ functions well as both an evaluative and a discriminative instrument. |
Mendeley readers
The data shown below were compiled from readership statistics for 202 Mendeley readers of this research output. Click here to see the associated Mendeley record.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Spain | 2 | <1% |
| United Kingdom | 1 | <1% |
| Brazil | 1 | <1% |
| Unknown | 198 | 98% |
Demographic breakdown
| Readers by professional status | Count | As % |
|---|---|---|
| Researcher | 30 | 15% |
| Student > Ph. D. Student | 25 | 12% |
| Student > Bachelor | 22 | 11% |
| Student > Master | 21 | 10% |
| Student > Postgraduate | 20 | 10% |
| Other | 42 | 21% |
| Unknown | 42 | 21% |
| Readers by discipline | Count | As % |
|---|---|---|
| Medicine and Dentistry | 83 | 41% |
| Psychology | 24 | 12% |
| Nursing and Health Professions | 9 | 4% |
| Agricultural and Biological Sciences | 7 | 3% |
| Social Sciences | 7 | 3% |
| Other | 20 | 10% |
| Unknown | 52 | 26% |
Attention Score in Context
This research output has an Altmetric Attention Score of 22. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 16 January 2019.
All research outputs
#1,712,696
of 25,385,864 outputs
Outputs from Quality of Life Research
#93
of 3,072 outputs
Outputs of similar age
#1,259
of 81,621 outputs
Outputs of similar age from Quality of Life Research
#1
of 9 outputs
Altmetric has tracked 25,385,864 research outputs across all sources so far. Compared to these this one has done particularly well and is in the 93rd percentile: it's in the top 10% of all research outputs ever tracked by Altmetric.
So far Altmetric has tracked 3,072 research outputs from this source. They typically receive a little more attention than average, with a mean Attention Score of 5.1. This one has done particularly well, scoring higher than 96% of its peers.
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We're also able to compare this research output to 9 others from the same source and published within six weeks on either side of this one. This one has scored higher than all of them