Caregivers' assessment of meaningful and relevant clinical outcome assessments for Sanfilippo syndrome

Overview of attention for article published in Journal of Patient-Reported Outcomes, April 2022

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twitter: 2 X users

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mendeley: 18 Mendeley

Summary X Dimensions citations

So far, Altmetric has seen 2 X posts from 2 X users, with an upper bound of 575 followers.

Working with families to obtain data on patient and caregiver experiences has always been important to me as a social scientist and crucial to informing treatment development. I'm eager to share our latest publication with Cure San…https://t.co/aTMmkDvBXo

05 May 2022

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Caregivers' assessment of meaningful and relevant clinical outcome assessments for Sanfilippo syndrome https://t.co/oFSypSLjjY

26 Apr 2022

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