RT @FDSSUK: These best practice management guidelines for fibrous dysplasia/McCune-Albright syndrome have been viewed over 37,000 times now…
RT @FDSSUK: These best practice management guidelines for fibrous dysplasia/McCune-Albright syndrome have been viewed over 37,000 times now…
RT @FDSSUK: These best practice management guidelines for fibrous dysplasia/McCune-Albright syndrome have been viewed over 37,000 times now…
These best practice management guidelines for fibrous dysplasia/McCune-Albright syndrome have been viewed over 37,000 times now! An amazing achievement for the FD/MAS international consortium and patient groups https://t.co/lppMiEd8wr
久しぶりに持病である線維性骨異形成症を調べてみると、マッキューン・オルブライト症候群に行きあたった。 線維性骨胃形成症で珍しいと言われた顔面での発症が、マッキューン・オルブライト症候群では特筆されてる…。ホルモン等も気になることが…。 これは、検査してみる必要あるかもしれん。
¡Ha ganado la mayoría! Efectivamente, se trata de un sindrome de McCune-Albright. Aquí la respuesta con enlaces bibliográficos:
La respuesta al #ortolunes de la semana es: ✅ a. Síndrome de McCune Albright. Es el resultado de mutaciones somáticas en el gen GNAS. Bibliografía: https://t.co/xJEz5sKYGJ https://t.co/dmjD5zrd8Y https://t.co/sUNu3XQfJF
RT @mmse30: @Trisha_the_doc @bmj_latest Treatment options are described as “limited”. As with many rare diseases, there’s little RCT eviden…
RT @mmse30: @Trisha_the_doc @bmj_latest Treatment options are described as “limited”. As with many rare diseases, there’s little RCT eviden…
RT @mmse30: @Trisha_the_doc @bmj_latest Treatment options are described as “limited”. As with many rare diseases, there’s little RCT eviden…
@Trisha_the_doc @bmj_latest Treatment options are described as “limited”. As with many rare diseases, there’s little RCT evidence for treating #fibrousdysplasia BUT there are guidelines for diagnosis, investigation & treatment PLUS support from @FDSSUK
RT @gavin_clunie: Good to see Best Practice Guidelines for Fibrous Dysplasia! Lets get auditing! https://t.co/JfVJmqjBAo @FDysplasia @FDSSUK
RT @gavin_clunie: Good to see Best Practice Guidelines for Fibrous Dysplasia! Lets get auditing! https://t.co/JfVJmqjBAo @FDysplasia @FDSSUK
RT @gavin_clunie: Good to see Best Practice Guidelines for Fibrous Dysplasia! Lets get auditing! https://t.co/JfVJmqjBAo @FDysplasia @FDSSUK
Good to see Best Practice Guidelines for Fibrous Dysplasia! Lets get auditing! https://t.co/JfVJmqjBAo @FDysplasia @FDSSUK
RT @Osteoporosis_NL: Best practice management guidelines for fibrous dysplasia/McCune-Albright syndrome: consensus statement from FD/MAS i…
線維性異形成/マッキューン-オルブライト症候群は、骨以外の組織に影響を及ぼす可能性があります。いくつかの症状は、頻繁な骨折、カフェオレ、思春期早発症です。 #ChildGrowthAwareness #isyourchildgrowingnormally https://t.co/Ubdwr93ovH
纤维异常增生/ McCune-Albright综合征可以影响骨骼以外的组织。一些症状是频繁的骨折,咖啡馆和性早熟。 #ChildGrowthAwareness #isyourchildgrowingnormally https://t.co/Ubdwr93ovH
Das Fibre-Dysplasia / McCune-Albright-Syndrom kann andere Gewebe als Knochen betreffen. Einige Symptome sind häufige Frakturen, Café-au-lait und vorzeitige Pubertät. #ChildGrowthAwareness #isyourchildgrowingnormally https://t.co/Ubdwr93ovH
Le syndrome de dysplasie fibreuse / McCune-Albright peut toucher des tissus autres que les os. Certains symptômes sont les fractures fréquentes, le café au lait et la puberté précoce. #ChildGrowthAwareness #isyourchildgrowingnormally https://t.co/Ubdwr93ov
Fiberous Dysplasia/McCune-Albright syndrome can affect tissues other than bone. Some symptoms are frequent fractures, café-au-lait and precocious puberty. #ChildGrowthAwareness #isyourchildgrowingnormally https://t.co/Ubdwr93ovH
RT @DeannaPortero: Thanks to @JavaidKassim for bringing this labor of love to finish line. So proud to have contributed, alongside other @F…
Great new international guidelines on Fibrous Dysplasia/MAS management @Fib_Dysplasie @FDSSUK @FDysplasia @JavaidKassim https://t.co/vEylUZq9Rq
RT @DeannaPortero: Thanks to @JavaidKassim for bringing this labor of love to finish line. So proud to have contributed, alongside other @F…
Thanks to @JavaidKassim for bringing this labor of love to finish line. So proud to have contributed, alongside other @FDysplasia/ @FDSSUK leaders & other great researcher clinicians like @AlisonBoyceMD. Congrats to all. Now, time to disseminate! #fdma
RT @Osteoporosis_NL: Best practice management guidelines for fibrous dysplasia/McCune-Albright syndrome: consensus statement from FD/MAS i…
Woww..
Best practice management guidelines for fibrous dysplasia/McCune-Albright syndrome: consensus statement from FD/MAS international consortium. Javaid MK et al. Orphanet J Rare Dis. 2019 Jun 13 https://t.co/asEM390So0 ...excellent paper see also additiona
線維性異形成症/ McCune-Albright症候群のためのベストプラクティス管理ガイドライン:FD / MAS国際共同体https://t.co/eYkNHaQE1Kからの合意声明
纤维异常增生/ McCune-Albright综合征的最佳实践管理指南:FD / MAS国际财团的共识声明https://t.co/eYkNHaQE1K
Pautas de gestión de las mejores prácticas para la displasia fibrosa / síndrome de McCune-Albright: una declaración de consenso del consorcio internacional FD / MAS https://t.co/eYkNHaQE1K
Best Practice Management-Richtlinien für fibröse Dysplasie / McCune-Albright-Syndrom: eine Konsenserklärung des internationalen FD / MAS-Konsortiums https://t.co/eYkNHaQE1K
Principes directeurs de gestion des dysplasies fibreuses / syndrome de McCune-Albright: déclaration consensuelle du consortium international FD / MAS https://t.co/eYkNHaQE1K
Best practice management guidelines for fibrous dysplasia/McCune-Albright syndrome: a consensus statement from the FD/MAS international consortium https://t.co/eYkNHaQE1K