🆕🔬Un recente articolo pubblicato su Orphanet Journal of Rare Diseases dimostra l’importanza di coinvolgere i pazienti con #malattierare nelle fasi iniziali della #ricerca a partire dagli studi di progettazione. Per approfondire l’argomento: ➡️https://t.c
RT @hazlehurst_j: Reading through the quotes in this important piece was very interesting and should help inform further work on rare disea…
Reading through the quotes in this important piece was very interesting and should help inform further work on rare disease and patient involvement from the very beginning. @IMSR_UoB @AS_UK https://t.co/bYZuhYC1wE
RT @HelenMcAneney: @a_j_mcknight @_KatieKerr_ @AshleenCrowe Well worth a read- patient’s view on rare disease trial design – a qualitative…
RT @HelenMcAneney: @a_j_mcknight @_KatieKerr_ @AshleenCrowe Well worth a read- patient’s view on rare disease trial design – a qualitative…
@a_j_mcknight @_KatieKerr_ @AshleenCrowe Well worth a read- patient’s view on rare disease trial design – a qualitative study https://t.co/w0x26Y7Jg3
RT @ejhg_journal: Points to consider: The patient’s view on rare disease trial design – a qualitative study https://t.co/IP404OAG3m #
RT @ejhg_journal: Points to consider: The patient’s view on rare disease trial design – a qualitative study https://t.co/IP404OAG3m #
RT @ejhg_journal: Points to consider: The patient’s view on rare disease trial design – a qualitative study https://t.co/IP404OAG3m #
RT @gjvo11: The patient’s view on rare disease trial design – a qualitative study https://t.co/JwgwyEwS7x #
RT @elizabethvroom: The patient's view on rare disease trial design - a qualitative study https://t.co/mUsNdG45DQ
Points to consider: The patient’s view on rare disease trial design – a qualitative study https://t.co/IP404OAG3m #
The patient’s view on rare disease trial design – a qualitative study https://t.co/JwgwyEwS7x #
RT @elizabethvroom: The patient's view on rare disease trial design - a qualitative study https://t.co/mUsNdG45DQ
RT @dlhofman: Benefits of including patients/patient representatives in the design of research on rare diseases https://t.co/yEa4H1OfyG
RT @dlhofman: Benefits of including patients/patient representatives in the design of research on rare diseases https://t.co/yEa4H1OfyG
RT @DrBen_Green: I think this is a very important consideration for researchers when in the trial development stage. Thanks for sharing, De…
RT @elizabethvroom: The patient's view on rare disease trial design - a qualitative study https://t.co/mUsNdG45DQ
RT @DrBen_Green: I think this is a very important consideration for researchers when in the trial development stage. Thanks for sharing, De…
RT @dlhofman: Benefits of including patients/patient representatives in the design of research on rare diseases https://t.co/yEa4H1OfyG
RT @elizabethvroom: The patient's view on rare disease trial design - a qualitative study https://t.co/mUsNdG45DQ
RT @CzerwinsMarcin: The patient's view on rare disease trial design - a qualitative study. Congratulations @RKaczmarekDr! https://t.co/N7Mx…
RT @elizabethvroom: The patient's view on rare disease trial design - a qualitative study https://t.co/mUsNdG45DQ
RT @elizabethvroom: The patient's view on rare disease trial design - a qualitative study https://t.co/mUsNdG45DQ
RT @elizabethvroom: The patient's view on rare disease trial design - a qualitative study https://t.co/mUsNdG45DQ
I think this is a very important consideration for researchers when in the trial development stage. Thanks for sharing, Denise.
Benefits of including patients/patient representatives in the design of research on rare diseases https://t.co/yEa4H1OfyG
RT @elizabethvroom: The patient's view on rare disease trial design - a qualitative study https://t.co/mUsNdG45DQ
RT @elizabethvroom: The patient's view on rare disease trial design - a qualitative study https://t.co/mUsNdG45DQ
RT @elizabethvroom: The patient's view on rare disease trial design - a qualitative study https://t.co/mUsNdG45DQ
RT @elizabethvroom: The patient's view on rare disease trial design - a qualitative study https://t.co/mUsNdG45DQ
Patients should be involved in the early stages of #raredisease trials
RT @elizabethvroom: The patient's view on rare disease trial design - a qualitative study https://t.co/mUsNdG45DQ
RT @elizabethvroom: The patient's view on rare disease trial design - a qualitative study https://t.co/mUsNdG45DQ
The patient's view on rare disease trial design - a qualitative study https://t.co/mUsNdG45DQ
RT @jonathanboote: The patients view on rare disease trial design - a qualitative study. New paper in Orphanet Journal of Rare Diseases htt…
RT @jonathanboote: The patients view on rare disease trial design - a qualitative study. New paper in Orphanet Journal of Rare Diseases htt…
RT @jonathanboote: The patients view on rare disease trial design - a qualitative study. New paper in Orphanet Journal of Rare Diseases htt…
RT @CzerwinsMarcin: The patient's view on rare disease trial design - a qualitative study. Congratulations @RKaczmarekDr! https://t.co/N7Mx…
The patients view on rare disease trial design - a qualitative study. New paper in Orphanet Journal of Rare Diseases https://t.co/ZIdJ5gwAta open access!!
RT @CzerwinsMarcin: The patient's view on rare disease trial design - a qualitative study. Congratulations @RKaczmarekDr! https://t.co/N7Mx…
RT @CNSdrughunter: Drug companies should involve #RareDisease patients in trial design from early on, and consider patient preferences on o…
RT @CzerwinsMarcin: The patient's view on rare disease trial design - a qualitative study. Congratulations @RKaczmarekDr! https://t.co/N7Mx…
The patient's view on rare disease trial design - a qualitative study. Congratulations @RKaczmarekDr! https://t.co/N7MxHyiagV #rare_disease #patient_involvement https://t.co/ag1JcaWyeT
RT @CNSdrughunter: Drug companies should involve #RareDisease patients in trial design from early on, and consider patient preferences on o…
RT @CNSdrughunter: Drug companies should involve #RareDisease patients in trial design from early on, and consider patient preferences on o…
RT @CNSdrughunter: Drug companies should involve #RareDisease patients in trial design from early on, and consider patient preferences on o…
The patient’s view on rare disease trial design – a qualitative study #OpenAccess #PatientsInvolved #PatientsEngaged @eupatients @eupatientsforum @DrugInfoAssn #DIAEurope2019 https://t.co/wRoRCT3elN
RT @CNSdrughunter: Drug companies should involve #RareDisease patients in trial design from early on, and consider patient preferences on o…
RT @CNSdrughunter: Drug companies should involve #RareDisease patients in trial design from early on, and consider patient preferences on o…
RT @CNSdrughunter: Drug companies should involve #RareDisease patients in trial design from early on, and consider patient preferences on o…
RT @CNSdrughunter: Drug companies should involve #RareDisease patients in trial design from early on, and consider patient preferences on o…
RT @CNSdrughunter: Drug companies should involve #RareDisease patients in trial design from early on, and consider patient preferences on o…
Drug companies should involve #RareDisease patients in trial design from early on, and consider patient preferences on outcomes, measurement instruments and trial length. Great publication on @Orphanet Journal listening to patient experts 👇 Thank you fo