In Italy, several patient organizations for neuromuscular disorders developed a @TREAT_NMD linked patient registry, with the referring clinical network providing input and support to this initiative through the years. @ojrarediseases https://t.co/qN6dznHw2
The Italian neuromuscular registry: a coordinated platform where patient organizations and clinicians collaborate for data collection and multiple usage https://t.co/8zX25X8lRc #digitalhealth #innovation #healthtech #medtech #li #fb
RT @ConnectRD: RD-Connect congratulates the authors of the new publication presenting the Italian Registry for neuromuscular diseases devel…
RT @ConnectRD: RD-Connect congratulates the authors of the new publication presenting the Italian Registry for neuromuscular diseases devel…
RT @ConnectRD: RD-Connect congratulates the authors of the new publication presenting the Italian Registry for neuromuscular diseases devel…
RD-Connect congratulates the authors of the new publication presenting the Italian Registry for neuromuscular diseases developed by FONDAZIONE TELETHON and Italian patient organisations. This flexible platform... https://t.co/TkC5If93SS
The Italian neuromuscular registry: a coordinated platform where patient organizations and clinicians collabor... https://t.co/TkC5If93SS
Read about Italian #NMD #Neuromuscular #Registry; where #raredisease patient organisations and clinicians collaborate on governance and shared decision-making. Congrats Anna @Telethonitalia! @ojrarediseases https://t.co/TPvG06BJcO https://t.co/zx3vX02PH4