I have already posted links to Gillberg's PDA scholarship, Kopp & Gillberg (2011), Gillberg (2013), & Gillberg et al (2015). Gillberg also co-authored O'Nions et al (2016a). Link to that one below: https://t.co/LMOaO0xKgl
@autistcnitemare From table 5 on p415 https://t.co/LMOaO0xKgl
To be clear O'Nions et al (2016a) did view PDA as an autism subgroup. Image is from p410 & 416. https://t.co/KPt4ytfbOc https://t.co/tjpEFKYeBo
Christie was involved in this study. https://t.co/OaiNSvCQc5 And this one: https://t.co/LMOaO0xKgl
Link to said article. https://t.co/LMOaO0xKgl
@TwittingTheo @kimturner70 @LUC_autism @autcareandshare @AutismKeynes @Autism @SENDinfoBucks @scarlet70020920 @JodieSmitten @NICEComms @BPSOfficial Above image is from page 408 of this article, Christie is third author on this article. https://t.co/LMOaO0x
@earlybirdword @Sarahmarieob Some view PDA to be a form of autism, like: https://t.co/LMOaO0xKgl
"clinicians are increasingly using the term to describe children who fit the profile." (O'Nions et al 2016 p8). https://t.co/LMOaO0xKgl
Link to O'Nions et al (2016), Identifying features of ‘pathological demand avoidance’ using the DISCO. https://t.co/LMOaO0xKgl
@HappeLab Simple rebuttal to O'Nions et al (2015) is that they viewed PDA to be autism subgroup. https://t.co/LMOaO0xKgl While at the same they ignored the ongoing debates in PDA literature, including contradictory results & views. https://t.co/TNvge8D
Screenshot if from here: https://t.co/LMOaO0xKgl
"As such, it is likely that clinicians were not particularly ‘on the lookout’ for PDA features in their cases." (O'Nions et al, 2016, p418). https://t.co/LMOaO0xKgl https://t.co/OQNU6ex9uC
Since then, there has been research that viewed PDA to be a rare autism subtype, using an arbitrary threshold of 30% or less for PDA traits. Guess who who was a co-author to the paper (rhetorical)? https://t.co/LMOaO0xKgl https://t.co/7UvZYGnS4q
@neuroteachers This one: https://t.co/q4cJ9UQTWE and this one: https://t.co/LMOaO0xKgl
"17 PDA-relevant DISCO items were not widely endorsed in general in an autism spectrum sample, since features typical of ASD in general are unlikely to be useful in identifying a meaningful subgroup." p410 https://t.co/LMOaO0xKgl
Changing associated trait to above question "strategies of avoidance are essentially socially manipulative" to "with strategies of avoidance that are essentially ‘socially manipulative’" Note the quotation marks in the latter. https://t.co/fozf4JLDMZ https
RT @Richard_Autism: Crucially, we know that research that changed the wording of PDA DISCO questions, O'Nions et al (2016) were trying to m…
Crucially, we know that research that changed the wording of PDA DISCO questions, O'Nions et al (2016) were trying to make PDA a meaningful autism subgroup. https://t.co/fozf4JLDMZ https://t.co/IjO5Okcw8r
RT @Richard_Autism: Link to revised PDA DISCO questions research https://t.co/fozf4JLDMZ There is a research agenda to get PDA recognised a…
Link to revised PDA DISCO questions research https://t.co/fozf4JLDMZ There is a research agenda to get PDA recognised as part of autism. Judy Eaton is part of PDA Development Group, whose agenda is get PDA recognised as part of autism (it views PDA as an A
I have issues with this sentence "This meant that it was possible to get an honest and unbiased picture of the features of PDA in this sample." (O'Nions et al, 2016, p418). https://t.co/LMOaO0xKgl
@milton_damian @paullib1972 @DrJudes03 @PDASociety @cassie_davies @sallycatPDA @stephstwogirls @HappeLab @AutismEducatio1 They are using features not associated to autism to identify PDA too. By definition it cannot be autism. Do we really want features li
@EnablenetInfo In other words they are using non-autism features to diagnose PDA, literally PDA is not autism. https://t.co/LMOaO0xKgl https://t.co/3YWQ4kelbh
Considering some have removed developmental traits, as features present too common in autistic population, to make PDA a meaningful autism subgroup. One can justify removing other traits, with similar or stronger rationale. https://t.co/LMOaO0xKgl https://
To put it this way, that is 9 out of 30 questions assessed. From what I can tell all 9 were included in the 26-item EDA-Q. There are 4 questions out of the revised 11 PDA DISCO questions. https://t.co/LMOaO0xKgl https://t.co/jMkVSWhTTs
@tinkerbellbites @milton_damian @martinbeecher @GillLoomesQuinn @PDASociety Newson was not trying to make PDA an autism subgroup, but was trying to show PDA was different to autism. Her research has a seletion bias, it is really poor quality generally. htt
@twillierod NAS has representatives on PDA Development Group. https://t.co/PiPKaEeqR2 Their agenda is make PDA a autism subgroup. https://t.co/LMOaO0xKgl Which is different to Newson's approach. https://t.co/j0TL5H5OZ5
Simple answer, O'Nions & others are trying to make PDA a meaningful autism subgroup. https://t.co/uEwK41IZD6 https://t.co/iblXr9bn5J
This is important. One I am not sure why they did this in the replication study, as the revised DISCO questions are different to original 15 PDA DISCO questions, and revised questions have their own PDA behaviour profile. https://t.co/LMOaO0xKgl https://t.
@NotPNT @Autism @DrJudes03 @PDASociety This is prominent PDA is an ASD researchers saying PDA is part of autism, is recognised by NAS and has interest from NAS conferences. @HappeLab https://t.co/LMOaO0xKgl https://t.co/SkLsMPNeQv
RT @Richard_Autism: What is really concerning is just how central Christie has been to arguing PDA is an ASD. Often the PDA literature argu…
RT @Richard_Autism: This happened in 2015 which is the same year, this PDA research which views PDA as autism subgroup was submitted & publ…
This happened in 2015 which is the same year, this PDA research which views PDA as autism subgroup was submitted & published. Uses NAS & AET support to justify their position.https://t.co/LMOaO0xKgl https://t.co/XqmcG9FZ0n
What is really concerning is just how central Christie has been to arguing PDA is an ASD. Often the PDA literature argues PDA is autism due to NAS's activities, like conferences. Also Autism Education Trust recognising PDA. https://t.co/LMOaO0xKgl https://
@cassie_davies @GillbergCentre Also PDA literature acknowledeges Newson took a different approach to identifying PDA to O'Nions et al (2016), who aimed to make PDA a "meaningful subgroup": https://t.co/LMOaO0xKgl https://t.co/tpnZTiWAaa
It also impacts PDA behaviour profiles. There are technically 5 in print, 1st is Newson's https://t.co/RlYD7PayIA & 2nd is Lorna Wing Centre, Table 5: https://t.co/LMOaO0xKgl & @Autism one: https://t.co/cDVJzMUrBk
@nomorecutz @drstevenkapp @autselfadvocacy @aneeman @HappeLab Link to research where PDA is viewed as an ASD. Agenda of study is to make PDA a "meaningful subgroup". High Altmetrics and 25000 views: https://t.co/LMOaO0xKgl https://t.co/xtIJVNN7ej
@thewoodbug @HappeLab @LauraMayCrane One can argue @HappeLab has benefitted from not discussing these facts in the PDA literature. For example, article where arbitrarily decided to view PDA as ASD, has high altmetrics and 24000 views: https://t.co/LMOaO0xK
@AlisonT86735672 7) You could use the 11 "validated" PDA questions from the DISCO, but these do not not fully assess all PDA features and they have specific scoring rules. This article is open access: https://t.co/uEwK41IZD6 https://t.co/cJEL8XOZVM
RT @Richard_Autism: For example, it is harder to justify doing research like this, which aims to make PDA a "meaningful subgroup" if one ac…
RT @Richard_Autism: For example, it is harder to justify doing research like this, which aims to make PDA a "meaningful subgroup" if one ac…
For example, it is harder to justify doing research like this, which aims to make PDA a "meaningful subgroup" if one acknowledges there is not enough evidence to view PDA as an autism subtype: https://t.co/LMOaO0xKgl
RT @Richard_Autism: To me it seems this research agenda presumes PDA is an autism subtype and this would seem to be reflected in the resear…
To me it seems this research agenda presumes PDA is an autism subtype and this would seem to be reflected in the research coming out from the PDA Development Group. https://t.co/LMOaO0xKgl & https://t.co/Eq6NN4NrXb
No idea if the 17 DISCO items are typo or 2 were removed for whatever reason. Other 15 are mentioned: https://t.co/LMOaO0xKgl & https://t.co/vqlvQ2NlRp https://t.co/6bBl5b9c6p
RT @Richard_Autism: What the PDA Development Group essentially seems to be about is furthering the view that PDA is an autism subtype. Bear…
What the PDA Development Group essentially seems to be about is furthering the view that PDA is an autism subtype. Bearing in mind NAS recognised PDA as an ASD in 2015, in the same year research from Lorna Wing Centre is published: https://t.co/LMOaO0xKgl
Their base is attempting to make PDA an autism subtype: https://t.co/LMOaO0xKgl Often only researching PDA in mainly suspected autistic population samples: https://t.co/VJeOEZbyXI & https://t.co/QxLcnOXpyI & Preconceived ideas https://t.co/bc6kQj
@milton_damian @AnnMemmott @Andylowarousal @roygrinker @Allison66746425 @IntersectQUB @laurentiosaurus @myergeau @KristenBott @AutismEducatio1 That Gould was involved involved in the LWC PDA DISCO research: https://t.co/LMOaO0xKgl That NAS via LWC provides
@milton_damian @AnnMemmott @Andylowarousal @roygrinker @Allison66746425 @IntersectQUB @laurentiosaurus @myergeau @KristenBott Including in Christie's involvement in @AutismEducatio1 republishing his GAP article: https://t.co/C9W49I4juZ Recognising PDA as a
@milton_damian @AnnMemmott @Andylowarousal @roygrinker @Allison66746425 @IntersectQUB @laurentiosaurus @myergeau Link: https://t.co/wb4HvlCa7B and https://t.co/zn5KgW3tXu Even PDA supporters accept rise in interest in PDA can cause bias: https://t.co/LMOaO
https://t.co/LMOaO0xKgl So we can all blissfully accept their predetermined evidence levels (Christie et al, 2011, p182) & their understanding of PDA. Which I point out is not scientific method. https://t.co/wb4HvlCa7B
Bare in mind, both: https://t.co/LMOaO0xKgl and: https://t.co/IlKoupSrUY Both do things to make PDA conform closer to autism. I cover this elsewhere: https://t.co/nowIUCC4FY
RT @Richard_Autism: So something that is giving me a headache is that I am unsure if 2 PDA studies are actually needed: This one: https://t…
RT @Richard_Autism: So something that is giving me a headache is that I am unsure if 2 PDA studies are actually needed: This one: https://t…
So something that is giving me a headache is that I am unsure if 2 PDA studies are actually needed: This one: https://t.co/LMOaO0xKgl and this one: https://t.co/IlKoupSrUY
Link to my article where make previous observation: https://t.co/wb4HvlCa7B Worth pointing out irony of PDA Development Group research suggesting interest in PDA could bias its research: https://t.co/LMOaO0xKgl https://t.co/IYLZFeOVkC
Links to respective PDA DISCO articles: https://t.co/LMOaO0Pl7T and https://t.co/vqlvQ2vKsP So I tabulated the respective entries for each article and cross-checked against relevant entries from a took based off 15 DISCO items. https://t.co/tOYVqDHdZc
Yet we know from their own research main PDA tools are designed to assess for Newson's dx traits: https://t.co/LMOaO0xKgl and https://t.co/vqlvQ2NlRp For a PDA dx to be valid, need to use Newson's PDA criteria over criteria advocated by PDA Development Gro
*Maybe seeing similar descriptions does not mean PDA is likely to be accepted.* Said editorial: https://t.co/TxKvvro8Ea In fact basing some PDA clinical measures on caregiver-based research is itself problematic, as done here. https://t.co/LMOaO0xKgl
RT @Richard_Autism: There is evidence to support these positions: https://t.co/wb4HvlCa7B Single cases: https://t.co/LMOaO0xKgl and: https:…
@NeilKenny0 The PDA DISCO paper: https://t.co/LMOaO0xKgl In the abstract one person with PDA did not meet clinical threshold for autism. I.e. is not autistic.
@NeilKenny0 @Andylowarousal @gdmorewood @caeruseducation @Allison66746425 @roygrinker @milton_damian https://t.co/wb4HvlCa7B This indicates ToM is not associated to PDA traits but is autism ones. https://t.co/wgGsANFWWm Single cases: https://t.co/LMOaO0xKg
There is evidence to support these positions: https://t.co/wb4HvlCa7B Single cases: https://t.co/LMOaO0xKgl and: https://t.co/q4cJ9UQTWE And https://t.co/MJXWKOrqaa
@AnnMemmott @PDASociety @PDASociety I suppose you would also say that non-autistic PDAers views on #PDA being lobbied as part of ASD do not count either? https://t.co/LMOaO0xKgl and https://t.co/q4cJ9UQTWE and https://t.co/MJXWKOrqaa
@dcasburn Remember the non-autistic PDAers are being masked by clinicians not looking to diagnose PDA in them. The literature says they exist: https://t.co/fozf4JLDMZ and https://t.co/q4cJ9UQTWE
@beanfrog There is some evidence saying PDA is seen outside of autism: https://t.co/wb4HvlCa7B And: https://t.co/fozf4JLDMZ
@gingertedwards @shivas_snake @mykola You want this: https://t.co/fozf4JLDMZ and this: For evidence suggesting PDA is found outside of autism: https://t.co/wb4HvlCa7B
@MakeItMummy @Dooppy 2) Research indicates PDA is not specific (found outside) to autism: https://t.co/fozf4JLDMZ and https://t.co/6Vz7XQsQE4
@michaelfitzger8 3) Such PDA is only a proposed autism subtype. There is nothing to stop moving diagnostic groups. 4) Clinicians and research indicates it is not specific to autism and such it is not an autism subtype: https://t.co/fozf4JLDMZ
@theAspergianCom @socially_well @AspienBlue "The concept of PDA has grown in popularity during the last decade, particularly in the UK where the description originated. Despite the absence of agreed" dx "criteria for PDA, the limited research base and its
@Autisticsensat1 I live in the states where this is not a thing. Thanks for letting me know about it. I found this but I'm not sure if it will help you: https://t.co/W9UsO7Zzum
@EllieMoleo @Autism NHS diagnoses and private given across the UK: https://t.co/LF6qwGjFIx PDA is a very specific cluster of behaviours, the features of which are so highly specific, that it's a recognisable distinct sub-type/profile of ASD. https://t.co/x
RT @NASInfoCentre: Read O'Nions et al's study on identifying #PDA features using DISCO. Full text online: https://t.co/Ayt06vTUPD
RT @NASInfoCentre: Read O'Nions et al's study on identifying #PDA features using DISCO. Full text online: https://t.co/Ayt06vTUPD
RT @NASInfoCentre: Read O'Nions et al's study on identifying #PDA features using DISCO. Full text online: https://t.co/Ayt06vTUPD
RT @NASInfoCentre: Read O'Nions et al's study on identifying #PDA features using DISCO. Full text online: https://t.co/Ayt06vTUPD
RT @NASInfoCentre: Read O'Nions et al's study on identifying #PDA features using DISCO. Full text online: https://t.co/Ayt06vTUPD
Read O'Nions et al's study on identifying #PDA features using DISCO. Full text online: https://t.co/Ayt06vTUPD
Open Access UCL Research: Identifying features of 'pathological demand avoidance' using the Diagnostic Interview... https://t.co/5fqCGdO0pt
RT @lifewithPDA: #pdaaware #pda #asd #asc NEWLY PUBLISHED research paper (available in full) O'Nions, E., Gould, J., Christie, P.,... http:…
RT @lifewithPDA: #pdaaware #pda #asd #asc NEWLY PUBLISHED research paper (available in full) O'Nions, E., Gould, J., Christie, P.,... http:…
RT @lifewithPDA: #pdaaware #pda #asd #asc NEWLY PUBLISHED research paper (available in full) O'Nions, E., Gould, J., Christie, P.,... http:…
Identifying features of 'pathological demand avoidance' using the DISCO. - PubMed - NCBI http://t.co/HV9AqbLMV7
New PDA related research article by O'Nions et al published in European Child and Adolescent Psychiatry journal.See http://t.co/31BVHoEM1y
Identifying features of ‘PDA’ using the Diagnostic Interview for Social and Communication Disorders (DISCO) http://t.co/31BVHoEM1y
New PDA related research article by O'Nions et al published in European Child and Adolescent Psychiatry journal.See http://t.co/31BVHoEM1y
New PDA related research article by O'Nions et al published in European Child and Adolescent Psychiatry journal.See http://t.co/31BVHoEM1y
Identifying features of ‘PDA’ using the Diagnostic Interview for Social and Communication Disorders (DISCO) http://t.co/31BVHoEM1y
New PDA related research article by O'Nions et al published in European Child and Adolescent Psychiatry journal.See http://t.co/31BVHoEM1y