Child and family experiences with inborn errors of metabolism: a qualitative interview study with representatives of patient groups

RT @JIMD_Editors: After recent transition posts, this work discussing child and family experiences of IEM is especailly relevant. Teams can…

RT @DrJNurse: An article discussing Child and family experiences with inborn errors of metabolism - thinking about what makes a good servic…

RT @JIMD_Editors: After recent transition posts, this work discussing child and family experiences of IEM is especailly relevant. Teams can…

RT @DrJNurse: An article discussing Child and family experiences with inborn errors of metabolism - thinking about what makes a good servic…

RT @JIMD_Editors: After recent transition posts, this work discussing child and family experiences of IEM is especailly relevant. Teams can…

RT @JIMD_Editors: After recent transition posts, this work discussing child and family experiences of IEM is especailly relevant. Teams can…

RT @DrJNurse: An article discussing Child and family experiences with inborn errors of metabolism - thinking about what makes a good servic…

RT @DrJNurse: An article discussing Child and family experiences with inborn errors of metabolism - thinking about what makes a good servic…

RT @DrJNurse: An article discussing Child and family experiences with inborn errors of metabolism - thinking about what makes a good servic…

An article discussing Child and family experiences with inborn errors of metabolism - thinking about what makes a good service, what should you clinical team be doing for you? No doubt applicable in wider world of chronic illness.

RT @JIMD_Editors: After recent transition posts, this work discussing child and family experiences of IEM is especailly relevant. Teams can…

After recent transition posts, this work discussing child and family experiences of IEM is especailly relevant. Teams can support children and families by acknowledging/reducing uncertainty, supporting through transitions, and contributing to progress http

RT @KylieTingley: Our (@CIMDRN) article re: interviews with #raredisease patient advocacy groups fully published & #openaccess here https:/…

RT @KylieTingley: Our (@CIMDRN) article re: interviews with #raredisease patient advocacy groups fully published & #openaccess here https:/…

Very happy to help fund this kind of rsrch ‘Child & fam experiences w/ inborn errors of metabolism:..’ http://t.co/MNX4erc2hY #Microgrants

Very happy to help fund this kind of rsrch ‘Child & fam experiences w/ inborn errors of metabolism:..’ http://t.co/MNX4erc2hY #Microgrants

Very happy to help fund this kind of rsrch ‘Child & fam experiences w/ inborn errors of metabolism:..’ http://t.co/MNX4erc2hY #Microgrants

Very happy to help fund this kind of rsrch ‘Child & fam experiences w/ inborn errors of metabolism:..’ http://t.co/MNX4erc2hY #Microgrants

Child & family experiences with inborn errors of metabolism: interview study with patient groups http://t.co/kEeP59tVzP #springerlink

Child and family experiences with inborn errors of metabolism: a qualitative interview study... https://t.co/xQbH3YpGrH

Qualitative interview study with representatives of patient groups http://t.co/BVGN0VHrQq #springerlink