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RT @BladderHealthUK: That is the average time continuous treatment is needed to achieve symptom resolution with a chronic UTI. https://t.c…
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That is the average time continuous treatment is needed to achieve symptom resolution with a chronic UTI. https://t.co/bzXUzHmDIJ #bladderproblems #UTIs #bladderpain #bladderhealth https://t.co/JyG7GulvfX
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RT @JamesMaloneLee3: @sierralebacchus @jasongilleranmd @ChronicUTIAus @ConfusedBladder @KennethMPeters1 @BeaumontHealth The IC/BPS diagnosi…
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RT @JamesMaloneLee3: @sierralebacchus @jasongilleranmd @ChronicUTIAus @ConfusedBladder @KennethMPeters1 @BeaumontHealth The IC/BPS diagnosi…
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RT @JamesMaloneLee3: @sierralebacchus @jasongilleranmd @ChronicUTIAus @ConfusedBladder @KennethMPeters1 @BeaumontHealth The IC/BPS diagnosi…
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RT @ChronicUTIAus: @Weavofloxacin Yes, we also believe SYMPTOMS are the KEY to UTI diagnosis. The late @JamesMaloneLee3 's research showed…
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RT @ChronicUTIAus: @Weavofloxacin Yes, we also believe SYMPTOMS are the KEY to UTI diagnosis. The late @JamesMaloneLee3 's research showed…
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@PEHJackson @BradSpellberg @RodrigoPLCosta @willyhfrick @Weavofloxacin This study did rely on pyuria being present even at very low levels ( ≥1 wbc μl−1 ) on direct microscopy from immediately fresh, unspun urine. https://t.co/aAqRT3eKYf
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Yes. This is very important.
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RT @ChronicUTIAus: @Weavofloxacin Yes, we also believe SYMPTOMS are the KEY to UTI diagnosis. The late @JamesMaloneLee3 's research showed…
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@Weavofloxacin Yes, we also believe SYMPTOMS are the KEY to UTI diagnosis. The late @JamesMaloneLee3 's research showed WBCs and epithelial cells, along with SYMPTOMS, are signs of infection that are helpful when monitoring treatment progress, so should no
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@TomBoylesID @cuticuk @MythoFobe @JamesMaloneLee3 @BundrickStewart We're not the right people to ask but our understanding is there is a proposed RCT based on the protocol at the centre of this paper. https://t.co/aAqRT3eKYf
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@TomBoylesID @ChronicUTIAus Why would the symptoms and pyuria oscillate down if it were just prophylaxis in patients without an infection? https://t.co/jFCdKXrRFC
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@TomBoylesID @Kangerine This observational study did find significant reductions in patients' urgency, pain, frequency & voiding symptoms and in pyuria https://t.co/aAqRT3eKYf
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@TomBoylesID @chrisharding123 @RKhasriya @TomBoylesID I hope I'm not your wasting time sharing papers you're already familiar with. Not a RCT but very interesting read. Recalcitrant chronic bladder pain and recurrent cystitis but negative urinalysis: What
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@alex_smithson @Peterpi30319529 @ISU_Urology We don't know which clinic Lynda is being treated at in the UK, there are several, but this might help answer the question. You mentioned before that you had read this paper. https://t.co/aAqRT3eKYf
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@alex_smithson @MythoFobe @_dawnwillbreak You might be interested in this 2018 study of 624 women over 10 years at the LUTS Clinic in London. Only 16% of these patients had UTIs that showed on traditional MSU culture https://t.co/aAqRT3eKYf
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@PelvicHealth @_dawnwillbreak @AshleyGWinter @drrachelrubin @AmerUrological Thank you, 1) https://t.co/txiXWVzW5X 2) https://t.co/RV7Uo2hYTZ 3) https://t.co/AC9pc1NKqg 4) https://t.co/XyzXp8wYLH 5) https://t.co/ANPgrjaCaL The research by James Malon
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@Healthyfairy86 https://t.co/m3xopoemsY Full-dose first-generation antibiotics for UTI, such as cephalexin, nitrofurantoin, or trimethoprim, were combined with methenamine hippurate.
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@DrGwoz @cUTIrUTIAusNZ @BundrickStewart @xxDonnaFraserxx @MishMash56 @SarahKGoldsmith @KeatingRachelle @GeoAnnie135 @AshleyGWinter @ChronicUTIAus @JoanneMckinlay4 @liveUTIfree @JamesMaloneLee3 And there is a control per that definition. Observing a relapse
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@DrGwoz @Kangerine @SarahKGoldsmith @xxDonnaFraserxx @KeatingRachelle @GeoAnnie135 @AshleyGWinter @JoanneMckinlay4 @liveUTIfree There is a RCT being prepared based on the particular treatment protocol described in this paper https://t.co/aAqRT3eKYf That wo
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@DrGwoz @SarahKGoldsmith @xxDonnaFraserxx @KeatingRachelle @GeoAnnie135 @AshleyGWinter @ChronicUTIAus @JoanneMckinlay4 @liveUTIfree It is supported by data. And people have died from not having had their infection treated, too. https://t.co/a7oS2trYNz, h
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@DrGwoz @xxDonnaFraserxx @KeatingRachelle @GeoAnnie135 @AshleyGWinter @JoanneMckinlay4 @liveUTIfree @JamesMaloneLee3 @RKhasriya I was unsure what science you were referring to. https://t.co/aAqRT3eKYf
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@cankles4days @AMC__APE__ @goochm54 @AshleyGWinter We don't pretend to have the answers but we do think it's our responsibility to ask these questions. There is a UK tertiary UTI clinic that banned all urine cultures because of the misleading results. This
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RT @MishMash56: @xxDonnaFraserxx @Aicha2008 @persistingpain @thehealthpsych ....And there's growing evidence that proves tests are insensit…
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RT @MishMash56: @xxDonnaFraserxx @Aicha2008 @persistingpain @thehealthpsych ....And there's growing evidence that proves tests are insensit…
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@xxDonnaFraserxx @Aicha2008 @persistingpain @thehealthpsych ....And there's growing evidence that proves tests are insensitve, cultures are unreliable/misleading, count thresholds are set too high etc. @adfurlan here is some 'objective' evidence: https://t
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RT @ChronicUTI: Simple first-generation urinary antibiotics, or methenamine, or both together, tend to work as long as they are taken in fu…
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Simple first-generation urinary antibiotics, or methenamine, or both together, tend to work as long as they are taken in full dose and for enough time to let the innate immune system clear the parasitised cells by shedding them. https://t.co/jcl2WqKk8x
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@chrisharding123 @NIHRtakepart @UniofNewcastle @NewcastleHosps People will recall a similar response to the release of this paper in 2018: https://t.co/aAqRT3ed8H It goes to show how much thirst there is for new research information on UTI.
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@ASMicrobiology @Thea_BK We find this an extremely weak justification for depriving symptomatic and suffering patients of appropriate treatment, as they generally do benefit from antimicrobial treatment even when their urinalysis is negative. https://t.co
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@lynari_pain @BundrickStewart @AlbertGilmore69 @beyondbasicspt Clearly, the descending white blood cell counts accompanying the decrease in symptoms (https://t.co/jFCdKXrRFC) is explained away by this rat study of another antibiotic suggesting activation o
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RT @cuticuk: Lots of research here demonstrating the flaws in UTI testing, new discoveries about chronic/intracellular UTIs & the bladder m…
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@DrGCrisp @callie_cat2005 @JamesMaloneLee3 @drmarkporter Dr Crisp, if you're looking for the science that shows our UTI tests aren't up to the job they're being used for, and failing patients left, right and centre, please see this Tweet: https://t.co/rKe
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RT @cuticuk: Lots of research here demonstrating the flaws in UTI testing, new discoveries about chronic/intracellular UTIs & the bladder m…
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RT @cuticuk: Lots of research here demonstrating the flaws in UTI testing, new discoveries about chronic/intracellular UTIs & the bladder m…
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RT @cuticuk: Lots of research here demonstrating the flaws in UTI testing, new discoveries about chronic/intracellular UTIs & the bladder m…
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RT @cuticuk: Lots of research here demonstrating the flaws in UTI testing, new discoveries about chronic/intracellular UTIs & the bladder m…
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Lots of research here demonstrating the flaws in UTI testing, new discoveries about chronic/intracellular UTIs & the bladder microbiome. Spread it far & wide & make them listen #CUTICampaign @APPG_WH @womenshealth
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@IDdocAdi There is also a massive problem with the opposite situation, where people are left to suffer because this dud test is negative and given the last word. https://t.co/gbkTXZweGd https://t.co/rleASf0i7V https://t.co/mXC5GyPCRu https://t.co/8oaaJF0X
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RT @helen_eager: @BladderHealthUK Current research suggests IC/BPS is in many cases (some would argue most cases) is actually embedded, chr…
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RT @helen_eager: @BladderHealthUK Current research suggests IC/BPS is in many cases (some would argue most cases) is actually embedded, chr…
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@BladderHealthUK Current research suggests IC/BPS is in many cases (some would argue most cases) is actually embedded, chronic infection. https://t.co/uYYBzUmjKQ
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@Kangerine @April25098849 Evidence takes 3 steps: Correlation, Intervention & Counterfactual. We did these repeatedly. The counterfactual: We record a response; stop treatment & measure relapse; restart & measure recovery. Described in this pap
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It would be amazing if a RANZCOG member used this to explore better diagnosis and treatment in Australia for undiagnosed chronic UTI in patients with pelvic pain https://t.co/aAqRT2WBK7
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RT @ConfusedBladder: @DrLAckerman I would be interested to know whether the authors have considered the published literature around the per…
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@DrLAckerman I would be interested to know whether the authors have considered the published literature around the persistence of infections in the bladder? And that the majority of patients who are treated for chronic UTI note considerable improvements in
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@DrLAckerman @ChronicUTIAus @briankmarksMD @LeslieRickeyMD @BethMuellerMD @brubaker1030 Here is some data on how to do that: https://t.co/a7oS2trYNz
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RT @JamesMaloneLee3: @sierralebacchus @jasongilleranmd @ChronicUTIAus @ConfusedBladder @KennethMPeters1 @BeaumontHealth The IC/BPS diagnosi…
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RT @JamesMaloneLee3: @sierralebacchus @jasongilleranmd @ChronicUTIAus @ConfusedBladder @KennethMPeters1 @BeaumontHealth The IC/BPS diagnosi…
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Chronic bladder pain and recurrent infections but urine tests negative? Please read this this research. @lsmythrelihan @jamfor1 @Richiepurology @LizaMclornan @EabhannOC @DeirdreFanning1 @hubiegallagher @oconnellclare @ICGPnews @RCSI_Irl @RCPI_news
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RT @JamesMaloneLee3: @sierralebacchus @jasongilleranmd @ChronicUTIAus @ConfusedBladder @KennethMPeters1 @BeaumontHealth The IC/BPS diagnosi…
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In 2018, a 10 year observational study involving 624 sufferers of #ChronicUTI & #IC was published. Treatment was successful in 84% of the patients diagnosed based on Symptoms & their own infection markers. Antibiotics didn’t increase AMR. http
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@jaminjahman We have not published those cure rates. I attach our most detailed analysis which I may have done already. We never use the word "cure" tending to describe "response" since the period on antibiotics is so remarkably varied. https://t.co/tFbOIo
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RT @JamesMaloneLee3: @LinaNPatel1 @ChronicUTIAus @BarrieEngel It is explained in this peer-reviewed publicaton https://t.co/tFbOIoASYv
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@WeeYin00 This is probably the best source of that information at this time: https://t.co/tFbOIoStQ3
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@LinaNPatel1 @ChronicUTIAus @BarrieEngel It is explained in this peer-reviewed publicaton https://t.co/tFbOIoASYv
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@ScarlettSHoward @ChronicUTIAus Trigonitis, hyperplasia and metaplasia are elements of chronic cystitis. The commonest cause of the latter is infection. These links go to the treatment evidence that we have at this time. A RCT is in preparation: https://
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@Sss8874319810 @sheela_swamy @BAUSurology @USANZUrology This study of 624 women with LUTS treated at a chronic UTI clinic is peer-reviewed, published in the International Urogynecology Journal and accessed online 45,000 times. Maybe the authors can explai
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@perforin You would appreciate this study Dr Hsieh. Your original Tweet suggests you suppose symptoms improvement is placebo or anti-inflammatory, this study proves otherwise. We are keen to hear your thoughts on the paper. https://t.co/aAqRT2WBK7
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@perforin Presumably you've read this 2018 paper on the pt group you're talking about. These people did not have treatment withheld based on a negative culture & the large majority improved. Ignoring this paper is to ignore an already neglected & m
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RT @ChronicUTIAus: Hi Dr Gilleran and Dr Levin, further to our Tweets earlier this year, have you had an opportunity to read through the at…
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RT @ChronicUTIAus: Hi Dr Gilleran and Dr Levin, further to our Tweets earlier this year, have you had an opportunity to read through the at…
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Hi Dr Gilleran and Dr Levin, further to our Tweets earlier this year, have you had an opportunity to read through the attached study on chronic bladder pain and recurrent cystitis? Keen to hear your thoughts on the science. @jasongilleranmd @MlevinMD
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@amymcdo3 I think that it would be best if you were to examine these publications which explain it all. I cannot achieve this in Tweets. https://t.co/tFbOIoASYv https://t.co/aEIgFe0Qwa
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@CassieM84288474 @ChronicUTIAus All science teams involved report the same: The isolates from these methods fail to discriminate normal bugs from pathogens. Causation is a massive challenge. Belief, opinion & wishful thinking ignore the problem & a
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@ICGPnews @RCPI_news @RCSI_Irl please read this.
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@amymcdo3 The first paper (v.inf) explains it and the second validates it. You treat on symptoms and pyuria (both graphed) using first generation, narrow spectrum, urinary antibiotics by trial and error elimination governed by response. https://t.co/tFbOI
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RT @JamesMaloneLee3: @amymcdo3 Throwing? The science is uncompromising & clear - Culture and 16s-rRNA are not able to demonstrate cause. It…
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@amymcdo3 Throwing? The science is uncompromising & clear - Culture and 16s-rRNA are not able to demonstrate cause. It is an assumption. The isolates are found in normal controls . Read these: https://t.co/PXhzLgJitx https://t.co/h39LqUcss7 What to d
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RT @BarrieEngel: Where’s the research for #EmbeddedUTI? #cUTI 😊Here’s some..........⬇️⬇️
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@Cecilie1110 @NicoleCozeanDPT @LRH33 @ldezmond1 @AmerUrological @JamesMaloneLee3 When you refer to "one person's clinic" are you meaning this study of 624 women with chronic LUTS and pyuria, that has been accessed 38,000 times? Recalcitrant chronic bladde
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All of this!!!
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RT @LRH33: @NICEComms @NHSEngland @rcgp @nhsrightcare @DHSCgovuk @MattHancock ⬇️⬇️⬇️⬇️⬇️⬇️READ BELOW AND PLEASE START TO LISTEN #ChonicU…
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RT @LRH33: @NICEComms @NHSEngland @rcgp @nhsrightcare @DHSCgovuk @MattHancock ⬇️⬇️⬇️⬇️⬇️⬇️READ BELOW AND PLEASE START TO LISTEN #ChonicU…
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@NICEComms @NHSEngland @rcgp @nhsrightcare @DHSCgovuk @MattHancock ⬇️⬇️⬇️⬇️⬇️⬇️READ BELOW AND PLEASE START TO LISTEN #ChonicUTI is REAL and tests & management must be changed to avoid needless suffering
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RT @JamesMaloneLee3: @sierralebacchus @jasongilleranmd @ChronicUTIAus @ConfusedBladder @KennethMPeters1 @BeaumontHealth The IC/BPS diagnosi…
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RT @JamesMaloneLee3: @jasongilleranmd @ChronicUTIAus @sierralebacchus @ConfusedBladder @KennethMPeters1 @BeaumontHealth We are to publish d…
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RT @JamesMaloneLee3: @sierralebacchus @jasongilleranmd @ChronicUTIAus @ConfusedBladder @KennethMPeters1 @BeaumontHealth The IC/BPS diagnosi…
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RT @CystitisInfo: This!!! 👇👇👇 https://t.co/gXtcuVDm6m
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This!!! 👇👇👇
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RT @JamesMaloneLee3: @jasongilleranmd @ChronicUTIAus @sierralebacchus @ConfusedBladder @KennethMPeters1 @BeaumontHealth We are to publish d…
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RT @KeatingRachelle: Indeed it is getting worse. So much suffering. https://t.co/x6EQI3PPEK
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RT @JamesMaloneLee3: @sierralebacchus @jasongilleranmd @ChronicUTIAus @ConfusedBladder @KennethMPeters1 @BeaumontHealth The IC/BPS diagnosi…
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@jasongilleranmd @ChronicUTIAus @sierralebacchus @ConfusedBladder @KennethMPeters1 @BeaumontHealth We are to publish data from 489 women, previously diagnosed with IC on cystoscopy. 100 (20%) started with zero pyuria of which 53 (10%) stayed that way; thus
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@sierralebacchus @jasongilleranmd @ChronicUTIAus @ConfusedBladder @KennethMPeters1 @BeaumontHealth The IC/BPS diagnosis hinges on the exclusion of UTI, but using tests that are incompetent at excluding UTI. Thus, the question: "Has infection been overlooke
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@jasongilleranmd I think I saw this study shared with you earlier. We urge you to read it on behalf of your patients who you haven't yet been able to help 'Recalcitrant chronic bladder pain and recurrent cystitis but negative urinalysis: What should we do
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RT @ChronicUTIAus: @DocSteveG @RACGP Dr Granier, thanks for weighing in. This much larger study from 2018, of 624 chronic UTI patients, ad…
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