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RT @RareDiseaseDxRx: Interesting article for the millions of people affected by an undiagnosed (rare) disease and their families. Understan…
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RT @RareDiseaseDxRx: Interesting article for the millions of people affected by an undiagnosed (rare) disease and their families. Understan…
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Interesting article for the millions of people affected by an undiagnosed (rare) disease and their families. Understanding Adult Participant and Parent Empowerment Prior to Evaluation in the Undiagnosed Diseases Network. https://t.co/xggwCeI4bA
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RT @UDNconnect: ICYMI: new UDN manuscript on patient & parent empowerment now online in the Journal of Genetic Counseling https://t.co/FblL…
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ICYMI: new UDN manuscript on patient & parent empowerment now online in the Journal of Genetic Counseling https://t.co/FblLhaw8S9
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Understanding Adult Participant and Parent Empowerment Prior to Evaluation in the Undiagnosed Diseases Network. https://t.co/KmYu3cZ7jH https://t.co/459d6XfBie
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New UDN manuscript now online in the Journal of Genetic Counseling: Understanding Adult Participant and Parent Empowerment Prior to Evaluation in the UDN https://t.co/FblLhaw8S9 #GCchat #openaccess